Life is strange and so are the many directions it takes you. Never did I imagine I would have a double-lung transplant in 2014 and eight months later pick up my belongings, my life, and my healthcare ...

I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...

Our cells contain DNA, a molecule that stores all the genetic information needed to make proteins. A gene is a specific sequence of DNA that carries the instructions for making a protein. In ...

Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...

I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...