Since 2013, I’ve had the privilege of being a fitness coach, nutrition coach, public speaker, influencer, and businesswoman. While my true passion lies in adventure — particularly physical challenges ...
Life is strange and so are the many directions it takes you. Never did I imagine I would have a double-lung transplant in 2014 and eight months later pick up my belongings, my life, and my healthcare ...
I always assumed my chronic fatigue would go away after starting Trikafta and getting through the newborn stage with my twins. But, when it didn’t, I realized I needed to rethink my approach to ...
Our cells contain DNA, a molecule that stores all the genetic information needed to make proteins. A gene is a specific sequence of DNA that carries the instructions for making a protein. In ...
Parenting a child with cystic fibrosis is very new to me and my partner, Ryan. Our daughter, Audrina, is 6 months old and was diagnosed with CF shortly after birth. Audrina’s experience with CF has ...
I was born in 1983, beginning my lifelong journey with cystic fibrosis. My early days were fraught with challenges. I had a swollen abdomen at birth, struggled with failure to thrive, and suffered ...
The Cystic Fibrosis Foundation organized a multidisciplinary committee to reevaluate key aspects of the current care model and considered potential modifications based on a widening range of health ...
The Georgia Chapter of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many opportunities for you to get involved.
The Delaware Valley Chapter - Philadelphia Office of the Cystic Fibrosis Foundation welcomes you! Volunteers are the key to our success and the lifeblood of our organization. We have many ...
Airway clearance techniques (ACTs) loosen thick, sticky mucus so it can be cleared from your lungs by coughing or huffing. Clearing the airways may help decrease lung infections and improve lung ...