Robin Collins is a self-described “little old lady.” She’s 4 feet tall in her wheelchair and unexpectedly hurtling toward age ...

Guest writer Robin Collins, who's approaching 70, has adjusted to losses and survivor's guilt while finding solace in ...

A new ASAH1 mutation linked to SMA with progressive myoclonic epilepsy was found in a young boy, offering insights for ...

Columnist Helen Baldwin says she's come to appreciate the people she's met in the community years after her son's SMA ...

Richard Kravitz, MD, shares why self-advocacy matters in healthcare and how to ask questions with confidence, clarity, and compassion.

While muscle relaxants can be a valuable tool in managing the pain, discomfort, and spasms associated with spinal muscular atrophy (SMA), the combination of SMA and muscle relaxants in the summer may ...

For columnist Connie Chandler, finding a community filled with love, admiration, and support has made all the difference in ...

Learn how SMA affects liver health, key risk factors, symptoms, and practical tips to manage and prevent liver complications in SMA patients.

After a weekend with her SMA community, columnist Brianna Albers faces a difficult truth: Some things are hers to achieve, and some are not.

Molecular markers in cerebrospinal fluid may help predict if people with SMA type 2 or type 3 will respond to treatment with Spinraza.

Upgrades to the home of a person with spinal muscular atrophy can ease daily SMA accessibility challenges and support greater ...